Beyond IEPs: Eight Ways Parents Can Help Advocate for Children with Autism

1. Schedule a meeting with school

district administrators to let them know how things are going and to share your ideas. You probably have already cultivated positive relationships with your child’s school, so escalate it to the district level – they’ll love to hear from you. Or volunteer for a district-wide committee or parent advisory council to share what you’ve learned.

2. Write a letter to your newspaper.

Write a short letter to the editor about what you think should be changed, or why you think your child’s school district deserves a pat on the back.3. Schedule a meeting with your local legislators to tell your story

and let them know how you feel about current policies related to people with autism. You may not get to speak directly with your Senator, Representative or Governor, but you will most certainly get to speak to someone on his or her staff. (Some lobbyists have already worn out their welcome, so speaking with a real constituent is like a breath of fresh air to a legislative staffer). If you are too shy or too busy to meet in person, send an email or make a phone call.4. Stay abreast of federal and state laws that currently affect your child, or will affect him in the future.

Check out sites like Take a refresher course on advocacy.

Local special school districts and advocacy organizations offer free advocacy training for parents.6. Be a parent mentor to help other parents become more confident advocates

. You’ve learned a lot; now share it with other parents who are just beginning their journey up Mt. Autism. You can sign up to be a parent mentor through a number of different organizations.7. Attend your children’s’ parent-teacher organization meetings.

Supporting your child’s school is a great way to meet new people and to gently make them aware of the sensitivities related to autism spectrum disorders.8. Sign up for research study

. Studies are underway for autism treatments, DNA, sibling and transition studies. Click here to view various autism research study opportunities.*Adapted From St. Louis Autism & Parenting ExaminerL Mae Wilkinson*


2 Responses to Beyond IEPs: Eight Ways Parents Can Help Advocate for Children with Autism

  1. Hello Mae,

    1 in 6 of our children are now autistic?

    Thanks so much for this suggestion. I’m talking to so many new moms afraid and being told that their toddlers are autistic because they are not talking yet. Yesterday when I saw this report from the CDC I got mad.

    I’ve been coaching these families for over 12 years helping them find their child’s purpose and their own place of power, by asking the right questions. This article was like me being coached for once. Thanks again!

    Believe well!


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